Support and Services
- Public Awareness: The Ad Council has developed a National Lupus Awareness Campaign, Could I have Lupus? This is a collaboration with the US Department of Health and Human Services and many other organizations. There is wonderful information on this website.
- Research Fellowships and Grants: We fund research whenever possible to better understand Lupus, develop better treatments to ultimately find a cure.
- Education:
- Informational/Educational Meetings: These are open to the public and are held in the spring and fall each year. The fall event is an educational day presented by doctors at the University of Rochester Medical Center;
- In-service training to health care providers;
- Attend Health Fairs supplying Educational Information and Literature;
- Speak to Community Groups;
- Appear on Public Service Programs whenever possible.
- Support services to assist individuals with lupus, their families and caregivers include:
- Telephone support;
- Physician referral list;
- Informational/Educational brochures;
- Local newsletters.
- Scholarships for SportsNet classes;
- Support Group for the individual with lupus is being reviewed. We would appreciate you completing our survey to help in the planning.
- Advocate for public policies that increase government funding for Lupus research, Educational programs, and Support Services.
- Community Resources & Collaborations:
- SportsNet, supplies sports and recreation to people with handicaps & disabilities;
Rochester Health offers information on doctors in the Rochester area and more;- CLIC on Health offers reliable medical information & additional community resources.
- Special Events include: Night of Encores Concert, Walkathons, and Golf Tournaments to raise awareness and funds to supply services.