Support and Services

  • Public Awareness: The Ad Council has developed a National Lupus Awareness Campaign, Could I have Lupus? This is a collaboration with the US Department of Health and Human Services and many other organizations. There is wonderful information on this website.
  • Research Fellowships and Grants: We fund research whenever possible to better understand Lupus, develop better treatments to ultimately  find a cure.
  • Education:
    • Informational/Educational Meetings: These are open to the public and are held in the spring and fall each   year.  The fall event is an educational day presented by doctors at the University of Rochester Medical Center;
    • In-service training to health care providers;
    • Attend Health Fairs supplying Educational Information and Literature;
    • Speak to Community Groups;
    • Appear on Public Service Programs whenever possible.
  • Support services to assist individuals with lupus, their families and caregivers include:
    • Telephone support;
    • Physician  referral list;
    • Informational/Educational brochures;
    • Local  newsletters.
  • Scholarships for SportsNet classes;
  • Support Group for the individual with lupus.
  • Advocate for public policies that increase government funding for Lupus research, Educational programs, and Support Services.
  • Collaborations with partners in the community help us to serve the needs of the lupus community:
    • SportsNet, supplying sports and recreation to people with handicaps & disabilities;
    • Collaboration with the Kidney Foundation;
    • Worked on the CLIC on Health website development to supply reliable medical resources;
    • Participated in the Health Association Collaborative to help improve Outreach efforts;
    • Member of the Women’s Wellness Collaborative with the MS Society and Nazareth College supplying    workshops from 2000-2008.
  • Special Events include: Night of Encores Concert, Walkathons, and Golf Tournaments to raise awareness and funds to supply services.